Im guessing theres no failures because its not a cure/fail deal... any imporvement is a sucsess.... no matter how small.... and then theres the plecebo effect, people thinking theyre better than they really are.

privateer Ive got my fingers crossed for you that youre one of the ones who gets a LOT better :-)

Im guessing theres no failures because its not a cure/fail deal... any imporvement is a sucsess.... no matter how small.... and then theres the plecebo effect, people thinking theyre better than they really are.

Ive been reading up on this in the british medical journal this morning.  It seems the deal with Stem Cell injections from umbilical cords into the bloodstream and base of the skull does indeed help (not cure).

The most common documented case is the first lady who had it called Angie McDonald.  She had the injections at the end of 2005.  It did apparently mildly alleviate some symptoms.  The effects wear off after 8-12 months and more injections are required.
http://news.bbc.co.uk/1/hi/england/merseyside/4527744.stm

There seems mixed reports as to the effectiveness and its all a matter of degrees.  Some people have improved eye sight, improved speech, etc.  There doesnt seem to be any real downside backed up with anything more than speculation.

Most of the other reports are related to MS unfortunately.

What I hadnt realised is Ataxia is hereditary and theres a 50% chance of passing it on to your children.


I found this blog of someone currently going through the treatment fairly interesting and may be useful Privateer:
http://stemcellataxia.blogspot.com/

The doctors cant tell you the results of the test on your own kids as to whether theyll develop Ataxia or not? If so thats a bit harsh.

Quote from: Privateer

Quote from: zpyder

I hate to be such a downer, but the thing that gets me about that site is, the fact that publications like New Scientist, which though glossy, tend to contain the groundbreaking news stories of the science world. They frequently publish articles on stem cell research.

However the latest issues all detail some form of stem cell research still at the lab and test rat/mouse stage. The closest I think I can remember to human trials was a statement that a technique mentioned would be ready in a couple of years for human trials. That site is, to me, the equivalent of a website being made 5 years ago advertising todays modern tech computers. Its possible, but not available quite yet. If it was it would have been on the BBC and all other major news channels much like Dolly the sheep. The labs leading the forefront of this kind of research are striving to be the first to achieve their goals, the second they can itll hit international headlines, not a website that is linked to on a forum...

It could of course be that these different patient reports are the result of trials that arent of the standard required for true scientific recognition. A lack of control groups and proper protocols etc. But then if this is the case, you have to ask yourself how many more people took part in the trials with no signs of treatment effect on them, or even negative effects, which the site may exclude from publishing.

if you were in my shoes, you might see things differently, some people have severe reactions, but I m at the stage where nothing matters

You clearly hold your kids in high regard then.

Id rather live 20 years disabled with my children, than die because of impatience and never have the chance to see my children grow up.

Theres no evidence of bad stem cell, in fact my kids are very exited,
Suzanne Shaw won dancing on ice, to win she risked death and brain injury and has a 4 year old, pick on her.

I hope the publicity gets you some help

Yes, best of luck with this, you know what they say about publicity - its all good.

Quote from: M3ta7h3ad

Quote from: Privateer

Quote from: zpyder

I hate to be such a downer, but the thing that gets me about that site is, the fact that publications like New Scientist, which though glossy, tend to contain the groundbreaking news stories of the science world. They frequently publish articles on stem cell research.

However the latest issues all detail some form of stem cell research still at the lab and test rat/mouse stage. The closest I think I can remember to human trials was a statement that a technique mentioned would be ready in a couple of years for human trials. That site is, to me, the equivalent of a website being made 5 years ago advertising todays modern tech computers. Its possible, but not available quite yet. If it was it would have been on the BBC and all other major news channels much like Dolly the sheep. The labs leading the forefront of this kind of research are striving to be the first to achieve their goals, the second they can itll hit international headlines, not a website that is linked to on a forum...

It could of course be that these different patient reports are the result of trials that arent of the standard required for true scientific recognition. A lack of control groups and proper protocols etc. But then if this is the case, you have to ask yourself how many more people took part in the trials with no signs of treatment effect on them, or even negative effects, which the site may exclude from publishing.

if you were in my shoes, you might see things differently, some people have severe reactions, but I m at the stage where nothing matters

You clearly hold your kids in high regard then.

Id rather live 20 years disabled with my children, than die because of impatience and never have the chance to see my children grow up.

Theres no evidence of bad stem cell, in fact my kids are very exited,
Suzanne Shaw won dancing on ice, to win she risked death and brain injury and has a 4 year old, pick on her.

Except risk with dancing on ice, is likely to be less than that of an experimental medical procedure in another country.

It sounds somewhat dubious, expensive, will get you further into debt that lets face it... you wont be able to get out of.

Best case, youll regain some mobility for a limited period of time.
Worst case you die in a foreign country with your kids on the otherside of the world waiting for an iphone.

Best of luck with it, but it all seems somewhat of a wing and a prayer from my viewpoint.

P.S. you may wish to have sanitised that newspaper clipping. - its incredible what a 192 search will bring up.