award winning.
did the BBC ignore this place.
http://www.xcell-center.com/
QuoteBBC NEWS Safety call over stem cell trips * A clampdown on unproven and potentially unsafe stem cell research is being called for by an expert group. * Bionet, a group of expert Chinese and European doctors, lawyers and bioethicists, says countries throughout the world must develop more effective regulation for this emerging science. They say desperate patients are being subjected to a huge amount of hype when they travel abroad for treatments. The only way to counter that is through proper clinical trials, they say. Professor Nicholas Rose, from the London School of Economics, who led the group, said Bionets team had talked to physicians in China and Europe because China had now overtaken India as the place where pharmaceutical companies were carrying out most of their trials. They had provided a wealth of anecdotal evidence about their concerns that stem cell research was being moved too rapidly into clinical practice without proper study. He said: "The key is informed consent. Doctors should be able to tell the patient about the short-term and long-term prognosis and the things we dont know about the risks." * Recommendations * Bionet is recommending that the safety and efficiency of stem cell treatments is investigated through state-of-the-art clinical trials before they are offered to patients. It also says doctors should be honest about the conditions under which germ cells, embryos or embryonic tissue has been collected. It also recommends that they should only be imported and used for research if they were collected under conditions which are either similar or equivalent to those in the receiving country. Nobody should be coerced by unfavourable circumstances or by being dependent on someone to donate cells or tissue for research, banking or treatment purposes, Bionet says. And there should be quality standards for stem cells used in clinical practice. These should include the bacterial and viral contamination applied during the production of the stem cells. China introduced new regulations in May calling for clinical trials before stem cell treatments were offered to patients. Professor Qui Renzong, vice-president of the ethics committee at the Chinese Ministry of Health, said: "In China there are about 150 institutions now providing stem cell therapy for diabetes through to spinal injuries." Foreign patients were paying an average of $25,000 (£15,434) he said but since the regulations were only recently introduced there was no way of knowing how many foreigners had made trips to China for treatments. * Patients visits * One patient who did go to China is 39-year-old Brian MacNeill, from Argyll, on the west coast of Scotland. He sufferers from hereditary ataxia, a muscle-wasting neurodegenerative disease. Mr MacNeill said: "All I can say about the treatment I had with stem cells in China was that I felt a great benefit after the first lot of four injections, with lots of therapy as well, and good benefit from my second visit about one year later. "The second visit was needed as I felt some of my symptoms come back after 10 months and now the second visit has lasted around 14 months. "I now am feeling symptoms come back but cannot afford to go for more stem cells. If I could I would. "Its better to feel good now when you have an illness than be somebody very unhappy and ill anyway without even trying." A Department of Health spokesperson said: "Any new therapy or treatment requires carefully controlled and evaluated clinical research before it can be considered safe and effective. "In the UK, there is strict regulation to ensure that vulnerable patients are not exploited or put at risk. "When stem cell treatments are based overseas, regulatory oversight and jurisdiction is particularly problematic. "We take this very seriously and strongly encourage anyone considering participating in overseas stem cell research trials or buying internet treatments to talk to their doctor and follow health guidelines." Story from BBC NEWS: http://news.bbc.co.uk/go/pr/fr/-/1/hi/health/8234206.stm Published: 2009/09/03 23:18:09 GMT © BBC MMIX
healthy people who decide for us dont realise we have no choice if your offered a possible cure you take it, if the UK did treat people theyd be more experianced.
I think the points raised there are completely legitimate
Quote from: EddI think the points raised there are completely legitimate
Odd as it sounds I agree with Edd.
Yeah I get what you mean, but still, Agree with Edd Here.
Slightly off topic, but how did that thing with stem cell stuff in China go? Last I heard you were saving up? You got in the paper too didnt you?
agree with edd too.... its not like theyre saying they are going to slow down / ban research / treatment... just saying it needs to be regulated
youd be the first to complain if you went to china for the treatment and came back with AIDS etc...
doesnt read as being political at all to me. reads like theyre saying the uk doctors are saying the chinese are taking it too fast.
Quote from: zpyderSlightly off topic, but how did that thing with stem cell stuff in China go? Last I heard you were saving up? You got in the paper too didnt you?
no not a penny raised yet, lol my treatment is dodgy according to the BBC.
we banned animal testing, so how are we to succeed. the BBC recommend we test things how exactly.
QuoteI know this guy hes in Chinna now.
Quote39-year-old Brian MacNeill, from Argyll, on the west coast of Scotland. He sufferers from hereditary ataxia, a muscle-wasting neurodegenerative disease. Mr MacNeill said: "All I can say about the treatment I had with stem cells in China was that I felt a great benefit after the first lot of four injections, with lots of therapy as well, and good benefit from my second visit about one year later. "The second visit was needed as I felt some of my symptoms come back after 10 months and now the second visit has lasted around 14 months. "I now am feeling symptoms come back but cannot afford to go for more stem cells. If I could I would. "Its better to feel good now when you have an illness than be somebody very unhappy and ill anyway without even trying." A
From: Brian McNeill
Sent: Tuesday, June 30, 2009 3:32 AM
To: xxxxxxxxxxxxxxxxxxxxx
Subject: Stem Cell Awareness day
Hi David,
Just to let you know that there is a Stem Cell Awareness Day on the 9th of August at this hotel, http://www.thistle.com/hotels/manchester/ If you are interested in going and staying there, then mention when booking that you are there for this event for a cheaper rate.
Regards,
B MacNeill
Quote from: PrivateerQuote from: zpyderSlightly off topic, but how did that thing with stem cell stuff in China go? Last I heard you were saving up? You got in the paper too didnt you?
no not a penny raised yet, lol my treatment is dodgy according to the BBC.
we banned animal testing, so how are we to succeed. the BBC recommend we test things how exactly.
We havent banned it - there are more animals being used in testing than ever.
http://news.bbc.co.uk/1/hi/sci/tech/8161253.stmAs to proper testing this needs to be carried out, but in some cases, where death of humans is inevitable and estimated to be imminent, we should consider speeding up the use of potential treatments. Just going abroad to drink snake oil isnt likely to get you anywhere. China has an immense HIV problem due to medical companies skimping on SAFE practices.
Quote from: SeriousQuote from: PrivateerQuote from: zpyderSlightly off topic, but how did that thing with stem cell stuff in China go? Last I heard you were saving up? You got in the paper too didnt you?
no not a penny raised yet, lol my treatment is dodgy according to the BBC.
we banned animal testing, so how are we to succeed. the BBC recommend we test things how exactly.
We havent banned it - there are more animals being used in testing than ever.
http://news.bbc.co.uk/1/hi/sci/tech/8161253.stm
As to proper testing this needs to be carried out, but in some cases, where death of humans is inevitable and estimated to be imminent, we should consider speeding up the use of potential treatments. Just going abroad to drink snake oil isnt likely to get you anywhere. China has an immense HIV problem due to medical companies skimping on SAFE practices.
Im sorry theres no dogs or monkeys the odd Stem Cell injection wont hurt,
Quote from: Seriousbut in some cases, where death of humans is inevitable and estimated to be imminent, we should consider speeding up the use of potential treatments.
Agree 100% on this
also should it not be the persons choice? I personally can not see anything wrong with someone signing a waiver saying that if they die its their own fault, and that the hospital isnt responsible
i think a major stumbling block would be the fact that the person may die in the hospital, putting their mortality rates up.
I can see why no hospitals or doctors would want to take this route
Look at me now destroyed with Ataxia how can I say no to China and a possible cure
after 7 years,
http://www.youtube.com/watch?v=b0dA-7QR0GY
http://www.youtube.com/watch?v=fOiLZKzE5fQ
watch this.
Rylea returns home after stem cell treatment in China
http://www.youtube.com/watch?v=ITRAchU2C0I&NR=1
how much did you need to go to china ?
16k iirc ?
Quote from: knightyhow much did you need to go to china ?
16k iirc ?
about that but ive got £150 so I wont be going there.
I know its been talked about before, but Im surprised you cant get a charity etc.. to help you out with it ?
hell it would probably be cheaper for the government to pay for you to go over once a year than give you the help you will be getting right now.... hell if you could work and pay tax theyre win twice over...
I didnt realise how bad you were until I just watched that van, not sure how to say this but its taking the piss when youre stuck using a zimmer frame when 16k could have you (pretty much) fixed!
do you talk on any other forums ? Id think if we had a whip round here we could raise a couple of thousand... Id put a good chunk of that in myself... maybe some other forums would be the same ?
once you have a few thousand promised you could try and get a local paper to do a story, see if that brings any extra in, get mates/family/anyone do do some kind of sponsored run/walk/whatever to get some more publicity etc.. ?
Quote from: knightyI know its been talked about before, but Im surprised you cant get a charity etc.. to help you out with it ?
hell it would probably be cheaper for the government to pay for you to go over once a year than give you the help you will be getting right now.... hell if you could work and pay tax theyre win twice over...
I didnt realise how bad you were until I just watched that van, not sure how to say this but its taking the piss when youre stuck using a zimmer frame when 16k could have you (pretty much) fixed!
do you talk on any other forums ? Id think if we had a whip round here we could raise a couple of thousand... Id put a good chunk of that in myself... maybe some other forums would be the same ?
once you have a few thousand promised you could try and get a local paper to do a story, see if that brings any extra in, get mates/family/anyone do do some kind of sponsored run/walk/whatever to get some more publicity etc.. ?
i now have a really sh*t memory This is my main Forum I occasionally use OCUK, butt always in trouble look. :mutley:
its crazy Im aware China is a very dodgy country, but stemcellschina is their no1 baby look at this.
http://www.youtube.com/watch?v=nEWoMVCXRHk&NR=1
Quote from: knightyI know its been talked about before, but Im surprised you cant get a charity etc.. to help you out with it ?
hell it would probably be cheaper for the government to pay for you to go over once a year than give you the help you will be getting right now.... hell if you could work and pay tax theyre win twice over...
I didnt realise how bad you were until I just watched that van, not sure how to say this but its taking the piss when youre stuck using a zimmer frame when 16k could have you (pretty much) fixed!
do you talk on any other forums ? Id think if we had a whip round here we could raise a couple of thousand... Id put a good chunk of that in myself... maybe some other forums would be the same ?
once you have a few thousand promised you could try and get a local paper to do a story, see if that brings any extra in, get mates/family/anyone do do some kind of sponsored run/walk/whatever to get some more publicity etc.. ?
Thats a joke between me and Brian McNeil, hes in China now his local paper raised enough for 3 trips, Ive been in my papers 3 times aswel not a penny raised, "he jokes and the Scottish are tight" also mny mate is a Landlord hes not raised a penny.
Privateer,
If I recall, didnt you have a lady from a local newspaper who was interested in you & wanted to publish article in the newspaper? What was the outcome of her in the end? Its a real shame that Ataxia is still not much well known in the public eye! I hope you manage to raise the money to get to China & get your treatment!
Liam
Quote from: LiamPrivateer,
If I recall, didnt you have a lady from a local newspaper who was interested in you & wanted to publish article in the newspaper? What was the outcome of her in the end? Its a real shame that Ataxia is still not much well known in the public eye! I hope you manage to raise the money to get to China & get your treatment!
Liam
i swear this Ataxia is awkward everthing I try fails, I live in Fareham, Southampton 12 milers west and Portsmouth 10 miles east, I was in the Portsmouth news twice and the Southampton Echo once, Clare Semke from the Portsmouth didnt turn up last week Monday.
http://www.portsmouth.co.uk/people/Reunited--and-now-old.5679195.jpTracy Gordon is a old friend, so if Clare Semke did a article it might help my other 3 articles failed.
facebook by Tracy Gordon
http://www.facebook.com/home.php#/group.php?gid=54982139576
If I do get to China the BBC and Panorama better prey my treatment fails, if it works god help them ill let them know they failed.